For Families

Taking Charge of Your Care & Learning About the Importance of Health-Related Quality of Life in Primary Immunodeficiencies (PIs)


This episode is hosted by Dr Hajjar, a Clinical Immunologist and Allergist in the Department of Pediatrics at Texas Children’s Hospital and Baylor College of Medicine, who takes care of patients with primary immunodeficiency (PI) disorders. Dr Hajjar interviews a patient diagnosed with a PI, Megan. Megan shares her insights on factors that affect the health-related quality of life (HRQoL) of patients with PIs and they discuss how patients can have more agency over their health and health outcomes.

This educational podcast is sponsored by Pharming. The information contained within this podcast is for educational purposes only and is not intended to be medical advice. The speakers have been compensated for the presentation of this information. This activity cannot be used for Continuing Medical Education credits. Patient experiences are discussed in this episode. It is important to recognize that these experiences may not be representative as every patient has a unique disease course. Healthcare professionals should exercise their own judgment when managing patients.




00:00 Importance of HRQoL in Primary Immunodeficiencies

17:05 Techniques for Improving Health and Quality of Life with Chronic Illness

28:20 Megan’s Experience with Factors that Affect HRQoL


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